You are invited to participate in a survey for a research study. The study is called, "No One Listens to Me" - Understanding Recovery When Patients Cannot Speak for Themselves.
The purpose of the study is to explore caregiver's perceptions of meaningful recovery in their family member who experienced a period of unconsciousness some time in their recovery following traumatic brain injury.
If you are a caregiver of a person 18 years of age or older who has had a traumatic brain injury and that person experienced a period of unconsciousness including coma, vegetative or minimally conscious state, we invite you to participate in the survey.
We have four anonymous surveys listed below. These surveys will ask you to compare short stories and determine which story represents more change. We request that you complete one of these four surveys. Once a survey has received 25 responses, it will not allow for more responses. If this occurs, please select the next survey on the list.
As of June 21, 2022, we are continuing to recruit at least:
9 caregivers to complete Survey #1
4 caregivers to complete Survey #2
2 caregivers to complete Survey #3
9 caregivers to complete Survey #4
The surveys above are anonymous. If you are interested in participating in future studies (surveys, interviews, observational, etc), please fill out this survey to provide us with your contact information so we can make you aware of these future opportunities.