Survivorship & Navigation Resources

Survivorship
Select Survivorship Publications
Survivorship Care Plan Templates

Patient Navigation
Select Patient Navigation Publications

Program Planning
Business and Program Planning Websites
Health Literacy Websites
Cultural Competency Websites
Needs Assessment

Online Resources for Healthcare Professionals

Survivorship

Select Survivorship Publications

Adler NE, Page AE. (Eds). Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs. 2008. Washington, DC: Institute of Medicine (IOM), National Academies Press.

Campbell MK, Tessaro I, Gellin M, et. al. Adult cancer survivorship care: experiences from the LIVESTRONG centers of excellence network. Journal of Cancer Survivorship. 2011;5:271-282.

Franco R, Stanton MP, Kindall SS. Cancer Survivorship Programs. Oncology Issues. January/February 2012.

Ganz PA (Ed). Cancer Survivorship Today and Tomorrow. 2007. New York, NY: Springer.

Hahn EE, Ganz PA. Survivorship programs and care plans in practice: variations on a theme. Journal of Oncology Practice. 2011 Nar; 7(2): 70-5.

Hewitt M, Greenfield S, Stovall E (Eds.). From Cancer Patient to Cancer Survivor: Lost in Transition. 2006. Washington, DC: Institute of Medicine (IOM), National Academies Press.

Hewitt M, Herdman R, Holland J. Meeting Psychosocial Needs of Women with Breast Cancer. 2004. Washington, DC: Institute of Medicine (IOM), National Academies Press.

Lance Armstrong Foundation, Centers for Disease Control & Prevention. A National Action Plan for Cancer Survivorship: Advancing Public Health Strategies. 2004. Atlanta, GA: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention. Available at http://www.cdc.gov/cancer/survivorship/pdf/plan.pdf.

Oeffinger KC, McCabe MS. Models for delivering survivorship care. Journal of Clinical Oncology. 2006;24(32):5117-5124.

Office of Cancer Survivorship (OCS) at the National Cancer Institute. Facing Forward Series: Life After Cancer Treatment. Available at http://www.cancer.gov/cancertopics/life-after-treatment

President's Cancer Panel. (2004). Living Beyond Cancer: Finding a New Balance. Bethesda, MD: U.S. Department of Health and Human Services, National Cancer Institute.

Rechis R, Beckjord EB, Arvey SR, Reynolds KA, McGoldrick D. The Essential Elements of Survivorship Care: A LIVESTRONG Brief. 2011. Available at: http://www.livestrong.org/pdfs/3-0/EssentialElementsBrief

Spinks TE, Walters R, Feeley, TW, Wied Albright H, et. al. Improving cancer care through public reporting of meaningful quality measures. Health Affairs. 2011;30(4): 664-672.

Survivorship Care Plan Templates

 


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Patient Navigation

Select Patient Navigation Publications

American Medical Association. Improving the Health Insurance Marketplace: Patient Navigators. 2012. Available at: http://www.ama-assn.org/resources/doc/market-reforms/patient-navigators.pdf?goback=.gde_1912768_member_146213348

Freeman HP, Rodriguez RL. History and principles of patient navigation. Cancer. 2011; 1:3539-3342.

Freund KM et al, National Cancer Institute Patient Navigation Research Program. Cancer. 2008;113(12): 3391-3399.

Moy B, Chabner BA. Patient navigator programs, cancer disparities, and the Patient Protection and Affordable Care Act. The Oncologist. 2011;16:926-929.

Desmini E, Kennedy JA, Helsley MF, Shiner K, et. al. Making the case for nurse navigators. Oncology Issues. September/October 2011; 26-33

Parker VA, Clark JA, Leyson J, et. al. Patient navigation: development of a protocol for describing what navigators do. Health Services Research. 2010;45(2):514-31.

Pratt-Chapman M, Simon MA, Patterson AK, Risendal BC, Patierno SR. Survivorship navigation outcome measures. Cancer. 2011;1:3575-3584.

Ramsey S, Whitley E, Warren Mears V, et. al. Evaluating the cost-effectiveness of cancer patient navigation programs: conceptual and practical issues. Cancer. 2009;1:5395-5403.

Wells KJ, Battaglia TA, Dudley DJ, Garcia R, Green A, Calhoun EA, Mandelbatt JS, Paskett ED, Patierno SR, Raich PC, Roetzheim RG. Patient navigation: state of the art, or is it science? Cancer. 2008;113(8):1999-2010.

Wilcox B, Bruce SD. Patient navigation: a "win-win" for all involved. Oncology Nursing Forum. 2010;37(1):21-25.

 


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Program Planning

Business and Program Planning Websites

Health Literacy Websites

Cultural Competency Websites

Needs Assessment

 


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Online Resources for Healthcare Professionals

Association of Community Cancer Centers
Cancer Care Patient Navigation: A Call to Action provides health care professionals with tools and tips on program development including a practical guide and continuing education activity.

C-Change
C-Change provides a Patient Navigation Promotional Tool Kit for marketing your program.

Cancer Care
The "Healthcare Professionals" section of the Cancer Care website offers educational materials for clinical practice, distance learning programs, and professional consultations.

Commission on Cancer
CoC Best Practices Repository houses tools and best practice resources to help institutions meet the CoC Cancer Program standards.

Cancer.net
The Survivorship section of Cancer.net is geared towards patients. It offers information about survivorship, rehabilitation and being an advocate.

LIVESTRONG
The "Survivorship Centers" section offers information about the LIVESTRONG Survivorship Center of Excellence Network. The "Cancer Support" section provides helpful resources for cancer survivors and their families.

National Cancer Institute Office of Cancer Survivorship
The NCI Office of Cancer Survivorship site provides information about funding priorities in survivorship research.

National Coalition for Cancer Survivorship
The NCCS is a cancer survivorship advocacy organization. The web site provides legislative updates concerning cancer survivorship issues. The "Cancer Survivorship Toolbox" is a useful resource to provide your patients.

National Comprehensive Cancer Network
(search Clinical Practice Guidelines in Oncology) NCCN provides disease-specific treatment follow-up guidelines. Registration is required, but access to these guidelines is free.

National Cancer Survivorship Resource Center
A collaboration between the American Cancer Society and the GW Cancer Institute through a 5-year cooperative agreement from the Centers for Disease Control and Prevention, the Survivorship Center's goal is to shape the future of cancer survivorship care and improve quality of life of cancer survivors as they transition from treatment to recovery.

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