Evaluating Cancer Survivorship Care Models: Research Updates

Project Activities: Fall 2014

Environmental Scan

We have wrapped up our environmental scan of Commission on Cancer-accredited institutions to identify the scope of clinical survivorship care services offered at institutions throughout the nation. Through data analysis, we identified existing models of survivorship care as well as determined which LIVESTRONG Essential Elements are currently provided.

Performance Standards

From this performance data we developed in collaboration with an ad hoc workgroup of Advisory Board members, a performance indicator that will be used to identify potential institutions for the CER phase of the study.

National Cancer Survivor Survey

We developed a survey utilizing a patient-prioritized framework that allowed a nationally representative sample of survivors to indicate core survivorship care elements. This includes the importance of post-treatment issues as well as the need for information and explanation of different care management and health services resources. Over 1,200 participants provided data identifying their post-treatment needs.

Research Update

The current phase of the project focuses on conducting comparative effectiveness research to assess differences in patient-centered outcomes (described by patients themselves in the first phase) across three care models identified by the environmental scan.  We will examine multiple survivorship care programs across the three models and we will collect data from patients to assess the impact of these programs.

Dissemination

AcademyHealth Annual Research Meeting on June 8-10, 2014 in San Diego, CA:

  • Research team members presented posters on stakeholder engagement and the environmental scan and presented a discussion of the focus groups during a panel.

Biennial Cancer Survivorship Research Conference on June 18-20, 2014 in Atlanta, GA: 

  • Research team members discussed secondary data analysis, the focus group findings and the environmental scan.

Presentation on Oct. 21, 2014 to the Washington, DC City-wide Patient Navigator Network:

  • The project manager presented some of the main DC focus group findings to a group of local patient navigators who work with patients across the cancer health care continuum.

Washington, DC survivorship gap analysis:

  • Research team members have published a gap analysis for DC breast cancer survivors to identify what's working and what's not in terms of survivorship care, resources and access as well as where the biggest gaps are to help focus improvement efforts. The DC breast cancer survivor focus groups will inform this analysis.

Engagement

If you would like to suggest tools or resources that we could develop for your communities, provide ideas for disseminating information about the project or if you have general comments you would like to share, please contact us at survivorship@gwu.edu or 202-994-7319.