The Evaluating Cancer Survivorship Care Models project is an innovative 3-year study that is collecting data to help understand how to best deliver follow-up care to cancer survivors. Cancer is a complex disease requiring complex treatments that can cause lasting impacts after treatment ends. Some patients face physical, psychosocial, spiritual and/or practical challenges as they adjust to life after cancer. Fortunately, health care providers have begun to focus on the consequences of cancer and its treatment and are more actively working with cancer survivors to manage post-treatment needs and care.
Led by the George Washington University and funded by the Patient-Centered Outcomes Research Institute, this project brings together representatives from the Commission on Cancer, the Cancer Support Community, LIVESTRONG and the American Cancer Society as well as cancer survivors and healthcare professionals to better understand how different strategies or models of care impact outcomes that are most important to cancer survivors. The project will focus on survivors of breast, prostate and colorectal cancers and will be relevant for understanding the needs and preferences of survivors of other cancers as well. The emphasis is on patient-centered outcomes, which are outcomes that are most significant to patients, such as patient satisfaction and quality of life.
The results from this project will help inform decisions made by survivors and their families, clinicians, payers and others. An Advisory Board comprising survivors, researchers, health professionals and other stakeholders has been established to guide the project and ensure the outcomes are relevant to key stakeholders. We have also identified other opportunities for cancer survivors to become involved in the project.
Project activities include:
- Analysis of data that has already been collected on survivors’ concerns, needs and gaps in care (completed)
- Focus groups with breast, prostate and colorectal cancer survivors to identify survivors’ concerns, needs and gaps in care (completed)
- Completion of an environmental assessment to identify current survivorship practices at Commission on Cancer-accredited institutions across the country (completed)
- A national survey of breast, prostate, and colorectal cancer survivors to identify the most important health care services needed and identify outcomes that survivors themselves prioritize as most important (completed)
- Development of a patient-prioritized framework for quality care that defines, from the survivor perspective, quality post-treatment care (completed)
- Creation of a tool to measure how well survivorship practices are achieving patient-centered survivorship outcomes (drafted)
- Description of models of care that provide more specific information about what services are provided, how, by whom and for whom (drafted)
- Comparison of the effectiveness of 3 models of care and their impacts on outcomes that cancer survivors identify as most important (fall 2014-summer 2016)